Wednesday, February 13, 2019

Sometimes You have to Hit the RESET Button in Life!!

Life Happens


Giggles in Florida

To say it's been awhile since I last posted an entry is an understatement!

Instead of throwing a bunch of excuses out there, let's use my life as an example and possibly as a learning tool for anyone going through an even remotely similar situation.  And, I know you're out there … don't be shy.

Let's admit it, we all strive to do everything we say we're going to do (make that much needed doctor appointment, walk the dog more, spend more time with family or friends, prepare a blog entry, etc.).  But, life gets in the way and there is only so much energy to go around within each 24 hour day.  Add on top of that, if you're living with a chronic illness such as lupus, sometimes circumstances can become so overwhelming you just give up trying.

Managing the stress of life and a chronic illness can range from challenging (on a good day) to downright exhausting and frustrating (on those days when everything seems to be going wrong).  You know those days … I call them the "Triple Threat" days.  You've heard the expression trouble comes in 3's?  For example:  my insurance company refusing to pay for a medication I've been taking for 20 years and charging $960 for 3 month supply, the car needing a new alternator (ouch!), and being awakened at 3 a.m. to the dog throwing up some unknown substance all over the rug! And fortunately, got the poor girl outside prior to another form of explosive substance occurred....

And Life Happens Again ….


If you're one of the millions of folks living with lupus, or fill in the blank with any other autoimmune disease or chronic illness, you know what it's like to manage your life.  Life happens!  Sometimes all it takes is the "check engine" light coming on in your vehicle to throw a wrench into things and be reduced to a large puddle of tears.

And sometimes, it's a more serious set of circumstances … such as selling your home of 11 years, moving to a new home in a new state and then having to evacuate for a Category 4 hurricane called "Michael"!

Yes, that really happened to me this past year, but I'm back and Giggles & I are doing okay!  After all, we are living at the beach!

Is it time to hit your RESET button?

My Next Chapter


Coming Soon - my journey with the new lupus drug called Benlysta.  

Today, Feb. 13th, is my first IV infusion, so wish me luck and I'll let you know how it goes.  

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